What to expect
What to expect at your clinic visit
All our patients will have access to cutting-edge genetic testing, organ-specific imaging (including magnetic resonance imaging-based volumetric measurements of cystic disease burden, magnetic resonance angiogram to rule out intracranial arterial aneurysm if indicated), and an experienced team of academic physicians with expertise in both medical and surgical (including interventional radiology, neurosurgery, dialysis and transplantation) management of kidney and non-kidney related complications.
Our philosophy is to involve all patients in their clinical decision making process as much as possible. In addition, we encourage all patients to participate in research studies so that we can generate new knowledge to advance treatment in polycystic kidney disease. During your clinic visit, we will go over one or more of the following aspects of your care:
Diagnosis, prognosis and management of your polycystic kidney disease.
Genetic counselling for diagnosis, prognosis and family planning.
Management of non-kidney organ complications.
Treatment options using approved (e.g. Tolvaptan) or experimental (e.g. cystic kidney volume reduction by foam sclerotherapy; novel drug clinical trials) therapy in polycystic kidney disease.
Treatment options for polycystic liver disease (e.g. Octreotide; ablation of large liver cysts by foam sclerotherapy; partial liver resection; liver transplantation).
Management and treatment options for intracranial arterial aneurysm(s) (endovascular vs. surgery).
We also provide a special risk assessment program for our nephrologist colleagues to help them identify “high-risk” patients who may benefit from new treatment such as Tolvaptan or participating in experimental procedure such as foam sclerotherapy (see Current Research) or novel drug clinical trials in ADPKD.